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Just seeing if anyone else is in MI who has the same condition.

I am 25, live in Kalamazoo...My doctors said I'm inoperable because it is on my brain stem, but if I went somewhere else they might do surgery on it. Honestly, I am too afraid to get it operated on. I am feeling a tiny bit better with each passing day, and rather ride my luck on a re-bleed.

I would love to meet someone else in person who has this condition!

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