1: Sun Aug 29, 2010 2:30pm INAMPFive years ago, doctors removed a cavernous hemangioma because it was shown to have burst several times.my condition is progressively worsening to where I (F, 39) don't have any balance, have "electric shocks" in my arm and leg (among other things such as neuropathy, double-vision, etc.) I have gone from barely needing a walker topretty much needing a wheelchair.
2: Sun Aug 29, 2010 2:42pm kirkmcThe symptoms of brainstem bleeds can be similar to those of MS. In fact, before there were MRIs, many people with brainstem CAs were diagnosed as having MS.
3: Sun Aug 29, 2010 3:09pm INAMPYeah, I had an MRI done in April of this year. I've had countless MRIs before that and it has been confirmed there are no more angiomas.
4: Mon Aug 30, 2010 10:59am libbyINAMP
5: Mon Aug 30, 2010 12:59pm INAMPThe angioma was at the intersection of the medulla, pons and cerebellum. My health really started going downhill right after removal in 2005. My quality of life is at its lowest.
6: Mon Aug 30, 2010 5:39pm INAMPI was reading about this: chronic cerebrospinal venous insufficiency.
7: Mon Aug 30, 2010 7:50pm ebraski
|Quote (INAMP @ Aug. 30 2010,17:39)|
|I was reading about this: chronic cerebrospinal venous insufficiency.|
I was wondering if anyone who had angiomas removed now have this?
I have tried getting a Doppler Test approved from my PCP, but she won't approve. Any suggestions to get this done?
8: Tue Aug 31, 2010 7:02am libbyFirst, I apologize for not writing back yesterday. I have days when I eyes don't focus enough to read. Yesterday seemed to be exceptionally bad.
9: Tue Aug 31, 2010 11:39am INAMPLibby,
10: Tue Aug 31, 2010 8:33pm Rockko
|Quote (INAMP @ Aug. 29 2010,14:30)|
|Even after removal, I keep having "stroke-like events".|
11: Tue Aug 31, 2010 8:45pm INAMPWhen the weather is warm and it is 2-3 days before the ol' menstrual period, I have an "attack" where one whole side of my body goes numb and I get violently ill (throw-up, diarreah and extreme sweating). This "attack" lasts 30-45 minutes. (I told my Neuro about and he said, "Just watch it when the weather is warm.")
12: Tue Aug 31, 2010 11:41pm OtownmamaJust throwing a thought out there...So your menstrual cycle starts with a sudden drop in the amount of progesterone after it peaks. High and low levels of progesterone can increase and decrease blood pressure by constricting and dilating blood vessels which I imagine could lead to some problems like bleeds-someone correct me here if I'm wrong-I've been out of the classroom scene a while! I do know that most of the doctors I've seen have said their is a possibility the hormones (high progesterone) during pregnancy may have triggered my bleeds. I swear my OB also said progesterone weakens the walls of blood vessels but I'll have to research that.
13: Tue Aug 31, 2010 11:50pm RockkoOh okay, gotcha. My right side is always fairly numb and it fluctuates with my general levels of fatigue and stress. Sometimes it is totally unpredictable. You seem to be able to tie your symptoms to certain events, so I would be careful and not assume that they are related to new bleeds. If there is one thing that I have learned about these things, it is how unpredictable that they are. That said, I would definitely seek out a Dr. that I trust and whom with I am comfortable. Just my two cents.
14: Wed Sep 01, 2010 10:17am INAMPThanks guys, for your replies!
15: Wed Sep 01, 2010 10:28am heidihiHello, I tried to look up the progesterone thing too and did not find anything. I wouldn't jump to conclusions but it sounds like your doing your homework... Let us know.. Your in my prayers!
16: Wed Sep 01, 2010 11:04pm beckyinazInamp
17: Thu Sep 02, 2010 12:36pm INAMPI'm in Louisville, KY, but will travel anywhere. Heck, after my first bleed, I flew to Johns Hopkins in Maryland.
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