1: Wed Jun 30, 2010 9:19am shawnm26I went to the hospital yesterday because of a headache. Tylenol didn't work to relieve it at home. My family DR is away so I wanted to get Tylenol 3's to dull the pain.
2: Wed Jun 30, 2010 9:34am libbyThough I do not know the scientific reason, I know we can't take them because we bleed. I had never had a bleed in my life and then I took an anti-inflammatory. That was the cause of my winter of my discontent in 87. Cerebellum bleed. It got bad. I avoid antiinflammatories so much that a few years back I had to have some surgery on a hemangioma in my gums and I couldn't open my mouth any more then a spoon opening for 3 months. Anti inflammatories would have REALLY helped that.
3: Wed Jun 30, 2010 11:16am kirkmcAs far as I understand, they "potentiate" bleeds by making blood more likely to seep through the walls of CAs. (Most bleeds are actually oozes/seepages, rather that ruptures.) My Big Bleed was certainly caused, or exacerbated, by taking aspirin regularly for several weeks to deal with back pain. Oddly, I never took any other kind of anti-inflammatory in my life; none of my doctors have ever prescribed them, even for my arthritis.
4: Wed Jun 30, 2010 9:27pm StaceyHIt's really scary how much WE have to know about our own medical histories, medications, etc! I told a nurse I was allergic to NSAIDs and she asked me how to spell it! Seriously??? Scary! I keep meaning to search it on here, as I'm sure it's been discussed, and I DON'T want to hijack this thread, but I'm considering getting a MedicAlert bracelet... the real one-the one that they call for your info... I'd be really interested in how many of you have it as well, especially since our condition is not a well known condition!
5: Thu Jul 01, 2010 10:19am shawnm26I wear a medic alert bracelet.(they didn't call me for info, although it is off the medic alert website) It states, no blood thinners, cavernous malformations, seizures. I find it makes me feel a bit more safe in case I have a seizure or become disoriented.
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