1: Tue Jun 29, 2010 12:33pm linda_mom of 2I just had my surgery for left parietal lobe cavernoma on June 18th in Arizona with Dr. Spetzler. My husband and I flew down to Phoenix on Wednesday the 16th from Ontario. Had the Pre-op testing (eg, bloodwork, ECG, paperwork, etc), MRI, and appt. with Dr. Spetzler on Thursday at Barrow Neurological Institute. Everything became more real when I saw my binder with my name on it. I thought, "Wow, we're actually doing it". At 7am Friday we went to Pre-Op again to get ready for surgery that was scheduled for 9am. The nurses were very nice and reasurring. They hooked me up to an IV and then at 8:50am a neurosurgeon, anesthesiologist and a surgical nurse came in to explain the procedure to me in good detail and their roles and the approach that would be used. Then the anesthesiologist said he would give me something to calm my nerves, although I surprisingly wasn't overly anxious as I kew I was in the best hands. (I was scared of course but strangely not freaking out). But what he gave me pretty knocked me out immediately. All I remember was kissing my husband goodbye and then the next thing I new was that I woke up in post-op with Dr. Spetzler looking down at me. I think he was telling me how it went but I don't remember. I just remember taking his hand in mine and putting it to my cheek and saying thank you-then I passed back out. He probably thought I was a bit pathetic:( My husband told me that after the surgery, Dr. Spetzler came to tell him that everything went well. Although he did say that the CA was "very tenacious" and it was a bit tricky to get it out as there was a big vein in the way that they had to deal with first. But he did get it all out he said. The surgery took four hours, longer than they said it would take initially. Afterwards I went to ICU where I was hooked up to lots of monitors, and was given morphine, but was awake. The meds made me sick to my stomach so I switched to Percacet which I've been on since. The next day (Saturday) I ate and walked around the halls many times on my own. My speech was a bit messed up as they anticipated due to swelling and the location of the surgery (speech centre), but they were happy about how well I was doing. That afternoon, Dr. Spetzler came in and said, "you can be discharged tomorrow". He said, "that I know you are paying this out of pocket so you can have the post-op MRI at home so you don't have to pay for it here". He also knew that I was going to stay at the hotel across for a couple days before flying back to Canada, but I was to come back to emergency if anything happened or I felt bad. He was trying to save us some $$$ by discharging me as quickly as possibly, which we appreciated. He would not have let me leave had I not been doing so well. I asked him some questions one being, "will the CA come back"? And his response was, "it is possible but the chances are low". He said that "anything is possible"....and off he went.
2: Tue Jun 29, 2010 3:32pm libbyThank you so much for sharing your story. That was amazing. I hope your speech continues to get better.
3: Tue Jun 29, 2010 5:07pm ElizabethWOW! Congratulations! I'm so happy for you and your family. I hope that I will be able to share my successful surgery story too after I have surgery with him in September :) Best wishes on your continued recovery....the worst is positively behind you!
4: Tue Jun 29, 2010 6:44pm kirkmcLinda, congratulations! Do keep us posted on your recovery. If they let you out that quickly, it sounds like you're doing very well!
5: Tue Jun 29, 2010 6:48pm rachelhI am so glad everything went well!
6: Tue Jun 29, 2010 7:57pm ketoganLinda i´m so glad everything went well and you´re on the road to recovery.
7: Wed Jun 30, 2010 7:06am RockkoGreat to hear that it went so well for you there! I spent about five weeks there last Fall so I can certainly visualize your story. Between my two surgeries, three weeks in the neuro ICU, and two more weeks in the the neuro rehab ward, I was ready to get out of that building. I'm glad that you got back to your family so quickly and can just concentrate on your recovery now. Take care of yourself!
8: Wed Jun 30, 2010 12:59pm vandyHi Linda,
9: Wed Jun 30, 2010 5:53pm EvansMomI just want to tell you how wonderful your story is. It is so great to hear you had a succesful surgery. It must give others a lot of hope. Thank you for sharing your experience and very glad you are doing well. I hope you continue to be very well.
10: Wed Jun 30, 2010 5:54pm OtownmamaLinda-
11: Wed Jun 30, 2010 8:33pm StaceyHLinda that's so great to hear you are doing so well!!! So glad to hear you had such a good experience and you're back home with your family! I cannot imagine getting on a plane and flying that soon after surgery-kudos to you!!! Please keep us posted and we hope to continue seeing you around here!
12: Fri Jul 02, 2010 10:52am linda_mom of 2Thanks everyone, it really hasn't sank in yet. Maybe it will when I have my post-op MRI done in a month. I wonder, "hmmm... what if he missed a bit??"
13: Fri Jul 02, 2010 11:27am libbyLinda,
14: Fri Jul 02, 2010 11:47am linda_mom of 2
|Quote (libby @ July 02 2010,11:27)|
We are in no rush for you to leave the forum. You still have all your experiences when you had the ccm and we get actually very few people who report back after surgery. There are many that are anxious to know things about that.
You are more then welcomed here, and I am glad you are doing so well.
15: Sat Jul 03, 2010 8:51am thatkatI am so glad that your surgery went well and that your recovery is moving along, too. Please stay on the forum! As Libby said, it is good to hear from people that have had surgery and how they do post-surgery.
16: Sun Jul 04, 2010 9:08am Heidi Ripke-CurcioWhat a wonderful story....Thankyou!
17: Sun Jul 04, 2010 1:12pm MotherLinda,
18: Thu Jul 08, 2010 12:30pm rachelhThat is wonderful!
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