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I am a freelance television producer and director with family experience of cavernomas.

Ian at Angioma Alliance asked me if we could raise awareness of the condition by making a documentary on the subject. I am looking for potential contributors for the documentary who have brainstem cavernomas and are considering surgery in the next six months.

The idea of the documentary would be to follow three patients through the decision making process ? the doctors? appointments and scans and, if they decide to go ahead with surgery, film the surgery and rehabilitation.

I understand that getting involved in such a project as this wouldn?t be a decision anyone would want to take lightly. But as you can see we are in very early stages and no commitment would be implied if you just wanted to get in touch to find out more.

So if you think you might want to contribute your story, or if you have any other questions about the proposed documentary, please contact me on

(We urgently need to do this to raise awareness. I have met with Anne-Claire, a sensitive and charming person, whom you can trust in this process to make an accurate, fine documentary. Ian Stuart)
What a fantastic idea - good luck to all concerned. Best,


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