Local Angioma Alliance Get-Togethers

Get togethers in colorado springs?

Back to Local Angioma Alliance Get-Togethers forum
Back to forum index

<-- Newer
Older -->

I live in Colorado Springs and am looking for a support group in the area.
I was diagnosed in Aug. '06 with a central pontine angioma of the brainstem after symptoms due to a few bleeds led to MRI's, etc., and Dr. Spetzler suggests a wait and see approach, not surgery at this time.
Sophia   :)
Hello!  We are in Colorado Springs too.  Both my 1 year old son and myself (26) have been diagnosed.

Email me!  aaselfridge@hotmail.com
Hi! I'm in Longmont, 35 miles north of Denver, and haven't found anyone near me w/this.  I had a bleed on or around 2/23/09, was diagnosed a week later, and am having another MRI on Monday in Denver. Planning surgery in a few weeks. I have a cavernous hemangioma in my right frontal lobe, and it's about 2 cm. Surgeon says it's not very deep. Not looking forward to surgery, but really want this taken care of. Having numbness/decreased sensation on left side of my body, slurred speech, vision issues, dizziness....Ugh. I'm a busy mom of six kids ages 5 through 18, and this was a HUGE shock.... :p
Hi, I live in Denver and am new to this site.  I would love a get together! Let me know when and where.
Hi again! I had surgery on 4/8 -- craniotomy -- and it went very well. I highly recommend my team of doctors, the Boulder Neurosurgical Group. My cavernoma was very close to my left motor strip, and they did SO many MRIs, including using inter-operative MRI (the only one in the state, apparently, is in Boulder). I feel pretty good. A huge relief having this thing OUT. It had bled before, doctor could see, so he cleaned things up, and I am on anti-seizure meds for now....I came home last night, 4/11. Very grateful to be over the worst of it, and on to recovery now. Happy Easter to you all! Peace.  :D
I'm so glad the surgery went well!  Thanks for the update and I will look into the group in Boulder.  Happy Easter to you too! Keep us updated on your recovery. Take Care.

Go to the Angioma Alliance Community Hub

Go to the Angioma Alliance Forum

Go to the Angioma Alliance website