1: Sun Jan 27, 2008 4:28pm GreektexanI live in Colorado Springs and am looking for a support group in the area.
2: Thu Jan 31, 2008 3:54pm someday12321Hello! We are in Colorado Springs too. Both my 1 year old son and myself (26) have been diagnosed.
3: Thu Mar 26, 2009 6:39pm MadCOMamaHi! I'm in Longmont, 35 miles north of Denver, and haven't found anyone near me w/this. I had a bleed on or around 2/23/09, was diagnosed a week later, and am having another MRI on Monday in Denver. Planning surgery in a few weeks. I have a cavernous hemangioma in my right frontal lobe, and it's about 2 cm. Surgeon says it's not very deep. Not looking forward to surgery, but really want this taken care of. Having numbness/decreased sensation on left side of my body, slurred speech, vision issues, dizziness....Ugh. I'm a busy mom of six kids ages 5 through 18, and this was a HUGE shock....
4: Sat Apr 11, 2009 9:16pm Consuelo38Hi, I live in Denver and am new to this site. I would love a get together! Let me know when and where.
5: Sun Apr 12, 2009 6:18pm MadCOMamaHi again! I had surgery on 4/8 -- craniotomy -- and it went very well. I highly recommend my team of doctors, the Boulder Neurosurgical Group. My cavernoma was very close to my left motor strip, and they did SO many MRIs, including using inter-operative MRI (the only one in the state, apparently, is in Boulder). I feel pretty good. A huge relief having this thing OUT. It had bled before, doctor could see, so he cleaned things up, and I am on anti-seizure meds for now....I came home last night, 4/11. Very grateful to be over the worst of it, and on to recovery now. Happy Easter to you all! Peace.
6: Sun Apr 12, 2009 8:17pm Consuelo38I'm so glad the surgery went well! Thanks for the update and I will look into the group in Boulder. Happy Easter to you too! Keep us updated on your recovery. Take Care.
Go to the Angioma Alliance Community Hub
Go to the Angioma Alliance Forum
Go to the Angioma Alliance website