I'm sorry you are going through this with your son. I'm not familiar with the Canadian experts but if you reach out to Shawn(the AA leader in Canada)...I think he can help you.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com