Page 1 of 1

Spinal Cavernous Angioma Online Support Group

PostPosted: Mon May 13, 2019 3:05 am
by Connie Lee
Next Sunday, May 19th at 3 pm PT, 6 pm ET, we will be holding our quarterly online support group meeting for those with cavernous angioma in the spinal cord. The meeting is held using Zoom video-conferencing. You can choose to join with video so you can see everyone or you may join with just audio.

You must pre-register at https://zoom.us/meeting/register/6980767bf411ba2acde7dc3c8da9331e

Once you've registered, you will receive an email with a link to join the meeting.

Re: Spinal Cavernous Angioma Online Support Group

PostPosted: Tue May 14, 2019 5:12 pm
by joanncooper
Hi Connie,
This is awesome! Would it be possible to start something similar for brainstem CM’s? I’ve been looking for a local stroke support group, but no luck. It would be so wonderful to talk with other’s that understand. My family has passed away and my husband is supportive, but really doesn’t understand what I’m going through. It’s hard for people to understand this disease especially if they cannot see anything…meaning the silent disabilities/deficits vs. the physical ones that people can see.
Thank you!

p.s. I'm not a Facebook user.