Netflix, NYTimes Are Looking for People Who R Undiagnosed

Discussions of issues related to living with cavernous angiomas

Netflix, NYTimes Are Looking for People Who R Undiagnosed

Postby PattiG » Sat Aug 25, 2018 4:23 pm

For anyone undiagnosed or maybe? misdiagnosed?, perhaps this would be for you! :)

https://themighty.com/2018/08/netflix-n ... 2018-08-24

Well wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
A Central Pain Syndrome Survivor's Perspective http://strokeconnection.strokeassociati ... rspective/
PattiG
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Re: Netflix, NYTimes Are Looking for People Who R Undiagnose

Postby Elizabeth » Sun Aug 26, 2018 3:28 am

I love this idea...so many people misdiagnosed at first with this.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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