Brainstem Cavernous Angioma Quality of Life Research

Discussions of issues related to living with cavernous angiomas

Brainstem Cavernous Angioma Quality of Life Research

Postby Connie Lee » Fri Jun 15, 2018 1:48 am

Mayo Clinic, an Angioma Alliance recognized CCM Center of Excellence, is conducting a survey of adult patients with brainstem lesions (or who have had a brainstem lesion removed) to understand the quality of life issues that impact our members. Please consider participating!

More information is on our site at http://angioma.org/pages.aspx?content=582.

Thanks!
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
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Connie Lee
Founder, Angioma Alliance
 
Posts: 438
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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