Please update your Patient Registry email address

Discussions of issues related to living with cavernous angiomas

Please update your Patient Registry email address

Postby Connie Lee » Mon Apr 04, 2016 4:42 pm

Has it been some time since you received a communication from the Angioma Alliance Patient Registry? If you know you registered and you haven't heard from us, there's a good chance we don't have your most recent email address. Please take a few minutes to make sure we have the correct information at https://angioma.patientcrossroads.org/. We've been getting requests from researchers to send out short questionnaires, and everyone's participation is critical to allow us to get a good picture of the illness's effects. If you need help logging in, contact coordinator@angioma.org.

And, if you're not registered, please do so today! Thank you!
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
User avatar
Connie Lee
Founder, Angioma Alliance
 
Posts: 417
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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