Please update your Patient Registry email address

Discussions of issues related to living with cavernous angiomas

Please update your Patient Registry email address

Postby Connie Lee » Mon Apr 04, 2016 4:42 pm

Has it been some time since you received a communication from the Angioma Alliance Patient Registry? If you know you registered and you haven't heard from us, there's a good chance we don't have your most recent email address. Please take a few minutes to make sure we have the correct information at https://angioma.patientcrossroads.org/. We've been getting requests from researchers to send out short questionnaires, and everyone's participation is critical to allow us to get a good picture of the illness's effects. If you need help logging in, contact coordinator@angioma.org.

And, if you're not registered, please do so today! Thank you!
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
To support Angioma Alliance, visit http://www.Angioma.org/Donate.
User avatar
Connie Lee
Founder, Angioma Alliance
 
Posts: 453
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

Return to Living With Cavernous Angioma

Who is online

Users browsing this forum: No registered users and 5 guests