Please update your Patient Registry email address

Discussions of issues related to living with cavernous angiomas

Please update your Patient Registry email address

Postby Connie Lee » Mon Apr 04, 2016 4:42 pm

Has it been some time since you received a communication from the Angioma Alliance Patient Registry? If you know you registered and you haven't heard from us, there's a good chance we don't have your most recent email address. Please take a few minutes to make sure we have the correct information at We've been getting requests from researchers to send out short questionnaires, and everyone's participation is critical to allow us to get a good picture of the illness's effects. If you need help logging in, contact

And, if you're not registered, please do so today! Thank you!
Connie Lee
President and CEO, Angioma Alliance
On this journey since 2000, when my infant daughter was diagnosed.
To support Angioma Alliance, visit
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Connie Lee
Founder, Angioma Alliance
Posts: 453
Joined: Sat Sep 25, 2010 2:41 pm
Location: Norfolk, Virginia

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