Angioma and eliquis

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Angioma and eliquis

Postby jji1071 » Thu Sep 20, 2018 3:08 pm

I have been monitoring cavernous angioma in my cervical spine for almost 10 years. Very minor leaking. I just started eliquis to thin my blood and am expected to continue taking it for several months, has anyone had any experience with blood thinners and this condition? To be quite honest it scares the hell out of me do to the location of the angioma! Any insight would be appreciated.....Thanks
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Re: Angioma and eliquis

Postby Elizabeth » Mon Sep 24, 2018 5:30 am

Why do you need to take the blood thinner? Occasionally people have needed to take blood thinners for different reasons. I hope it's smooth for you!
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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Re: Angioma and eliquis

Postby Connie Lee » Fri Sep 28, 2018 12:44 pm

There are now a number of studies indicating that use of blood thinners does not seem to increase the incidence of hemorrhage with CCM. That said, I don't think there is evidence yet on whether the question of whether a blood thinner might worsen a hemorrhage that occurs when the blood thinner is in a person's system.

https://www.ncbi.nlm.nih.gov/pubmed/23150651

https://thejns.org/view/journals/j-neurosurg/118/1/article-p43.xml
Connie Lee
President and CEO, Angioma Alliance
17-year-old daughter with CCM3 mutation who has had 4 brain surgeries, T2-L3 spinal fusion
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