Niky's Introduction

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Niky's Introduction

Postby Nholmes211 » Fri Feb 05, 2016 4:10 am

Hello everyone my name is Niky.Recently diagnosed with familial multiple cavernous malformations while in the er.. I have first neurologist app on Tuesday. I'm nervous but all I can think about is please don't let my kids and grandson have this.the headaches are horrible. My vision is blurred on one eye and I constantly see a floating black dot. Are any of you experiencing this? I'm happy to have found this site.
Nholmes211
 
Posts: 2
Joined: Fri Feb 05, 2016 3:55 am

Re: Niky's Introduction

Postby oleblue » Tue Feb 23, 2016 6:16 pm

Welcome Niky. You will find Angioma Alliance a great wealth of knowledge and compassion. So keep us posted on your progress. What state do you live in? You can update your profile to reflect town and state if you so choose. Trying to connect the dots with each other! :lol:
oleblue
 
Posts: 29
Joined: Mon Aug 01, 2011 3:47 am
Location: Warren Oregon

Re: Niky's Introduction

Postby Michelle2000 » Tue Feb 23, 2016 11:25 pm

Welcome, NIky,

I'm glad you found us, but sorry you needed to. How did your appointment with the neuro go?

Best wishes,

Michelle
16 year old son with brainstem CM resected in March 2010, CM at C2-C3,
CCM2 mutation; DH, MIL, & BIL with multiples in brain and spine
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