Introduction

New members can introduce themselves here

Introduction

Postby Krystalnameth » Wed May 29, 2019 12:54 am

Hi all... I’m new to the group but not new to cavernoma. May 31, 2007 I had a bleed (I guess they refer to it as a stroke as it was really impactful and resulted in a 7 day ICU bed). I was off work nearly 4 months and then just went back full time wanting desperately for my life to return to “normal”. Fast forward ... I’m approaching my anniversary of my bleed and am again off work (this time it’s been 2.5 years) with no real hope of returning due to temporal lobe seizures. My Cav is too deep to operate on and so I’ve been on the medication journey looking for the right seizure med.

I’m located near Regina and don’t know anyone who has one (or more) of these and I don’t know anyone who understands except my husband but I’m sure he’s sick of hearing about it. Looking for someone to chat with, meet for coffee or text with just to have some social contact with someone who understands, and can help me remember I’m not crazy!

Thx for taking the time to read my intro and hope to hear from folks soon!
Krystal
Krystalnameth
 
Posts: 1
Joined: Wed May 29, 2019 12:43 am

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