New members can introduce themselves here


Postby kdahlem » Wed Jan 02, 2019 8:24 pm

Hello everyone and Happy New Year!

I would like to introduce myself - I am Kristen Dahlem and I am personally affected by CCM. I was diagnosed about 15 years ago as a young adult and am living with my brain lesion that is located near the basal ganglia. I have also been a volunteer with Angioma Alliance for a few years and am happy to announce that as of today I am working as the Clinical Research Specialist for the organization. I am thrilled to be on board to help drive our mission while getting to know you all and supporting cavernous angioma research. I am also a registered nurse and in 2017 became certified as a functional medicine health coach. I live near the beach in NY, love being active, traveling, and living a healthy lifestyle.

I look forward to getting to know you and wish you a happy and healthy 2019! :D

Posts: 1
Joined: Mon Dec 31, 2018 5:01 pm

Re: Introduction

Postby Michelle2000 » Sun Jan 06, 2019 10:06 pm

Welcome, Kristen!
18 year old son with brainstem CM resected in March 2010, CM at C2-C3,
CCM2 mutation; DH & BIL with multiples in brain and spine; (MIL - deceased spine & brain)
Posts: 715
Joined: Thu Dec 02, 2010 7:40 pm

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