Hello, In December of 2016, I was under extreme stress at work and I began to experience optical migranes, visual disturbance without pain. I had thought, stress, it will go away. Then they increased, and in February it lasted six hours with the day ending with a terrible headache. I went to a retina specialist, worried my retina was detaching. Everything good, so off to a optical neurologist, where it was found I was blind in my right eye. Just a small spot. The dr felt it may be viral, but he would order an MRI because 1% of patients have a tumor or blood clot. I was in the 1%, with a bleed in my lower left brain. I was wisked off to the ER of a local university hospital where I was told, I had a cavernous malformations. It had bleed, and now I would be observed.
I have contacted John Hopkins in Baltimore for an evaluation, but that takes some time for my records to be reviewed. I am wondering if anyone has experience at Hopkins? Also wondering about anyone else with the optical migranes? When I'm having one, I'm wondering, does this mean it's actively bleeding? Thanks C in Maryland