I moved your post to make your own thread. Feel free to add more on the old thread you originally posted to. I just wanted to be sure that you got your own new space, and u wouldn't get mixed up with the other poster.
Anyways, I'm sorry you are having problems. First thing I noticed is, u said the doctor prescribed advil.....NO...NO!!! NO!!!!
I personally would fire any doctor that prescribed me a blood thinner, knowing I had a cavernous angioma. Theory behind no blood thinners is this...thin blood bleeds more so if you were to have a bleed when taking blood thinners...it could be worse if ur blood was thin. That doctor is clearly misinformed. You should go to the main site and read the section for new diagnosed people...lots of good info there. We usually recommend a few things to everyone...No blood thinners of any kind(no advil, aleve, aspirin, omega oils in large doses, etc) No rollercoasters, and No scuba diving.
Sounds like you need an expert too. Where are you located? If ur east coast, you might want to check out Dr. Awad in Chicago. If you west coast, check out Dr. Spetzler (phoenix)or Dr. Steinberg(Stanford, northern CA). We are not doctors here, but only sharing our experiences. Sounds like you might have had a recent bleed, and some expert evaluations might help you figure out what to do. Spinal cms are more rare, so you will want someone familiar with what you have. Have you had a brain MRI too? If not, you might want to have one..to make sure you only have the one in your spine.
Also, this forum is more quiet these days. If you're on Facebook, you might want to check us out there...most people have migrated there. I'm not on facebook, so u won't find me there...but lots of others are there.