Oklahoma Anyone?

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Oklahoma Anyone?

Postby nickypro252 » Sat Jan 21, 2017 6:36 pm

Newly diagnosed with brainstem cavernoma. Anyone else in OK with this?
Brainstem cavernoma discovered on 1/10/17 after hemorrhage. Learned it was a second bleed. Thankful for each day!
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Re: Oklahoma Anyone?

Postby Elizabeth » Sun Jan 22, 2017 12:08 am

I don't know anyone in OK, but if ur on Facebook(I'm not), you might try our group there...it tends to be more active than here.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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