Medical Marijuana to help with symptoms?

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Medical Marijuana to help with symptoms?

Postby MojaveSun19 » Mon Apr 08, 2013 7:35 pm

Hello Everyone,
I have multiple CAs, had surgery in December 2011 and am looking to be due for another surgery this year as well. My question to anyone who has had experience or has insight: how, if at all, has marijuana in any form, helped deal with symptoms due to CAs? Has it made them worse, better? Do you feel it has done nothing? Are there any physical benefits? What are some possible longterm downsides?

This is not a question or topic intended to illicit or promote the use of recreational marijuana. This is purely a medical question related exclusively to this disease. I have been giving this a lot of thought and learned that there is a great limit to this in medical research and understanding in relation to CAs/CCMs.

In my personal experience I have used marijuana to help with my fogginess, headaches, dizziness, and that feeling of being overwhelmed, scared, and powerless during a bleed. However, my experience with marijuana for medical uses has not been wholly consistant. I imagine without a dispensory in my state or exclusive monitoring of dosage, that I'm kinda running around in the dark. At first during the bulk of recovery from surgery, my consumption offered a positive experience. However in the most recent months, symptoms have exacerbated related to a CA that has grown from 3mm to 15mm in 1 year. The bleeds with my more recent symptomatic CA have gotten heavier and more frequent. I am concerned if my usage in the past year has attributed to the growth, or if that's just a normal part of having the genetic version of the disease. My current neuro has been no help in this arena, and has almost no input on the subject. I don't know if its just my state, but I have found very little help in the medical community in regards to natural aids or any help outside of pills or surgery to moderate symptoms.
I have already changed my lifestyle to be as healthy as possible. I know the basics: no blood thinners, good sleep, lots of fresh fruits and veggies, good protiens and fats, moderate exercise.... This is not an issue, and I rather enjoy the healthier lifestyle granted to me because of my disease. But as far as I have learned in the past 8 years, bleeds can be prolonged and reduced, but never stopped, especially when you got 30 of them floating around in your head :P . I'm just looking for ways to reduce the impact of symptoms WITHOUT medicating myself with pills everyday. I am very enthusiastic to hear positive or helpful perspectives on medical marijuana, or links to any studies related to it and CAs/CCMs!!

Thanks for reading through!
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Re: Medical Marijuana to help with symptoms?

Postby vandy » Wed Apr 10, 2013 1:06 pm

Hi,

As far as my knowledge goes, smoking and smoking marijuana are bad for us. They increase inflammation in the body and brain and we should avoid inflammation as much as possible.

If you search the forum site topics, you will find topics like this:

http://www.angiomacommunity.org/forum/viewtopic.php?f=16&t=1235&p=7693&hilit=smoking#p7693

Hope this helps.

Henk :ugeek:
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Re: Medical Marijuana to help with symptoms?

Postby MojaveSun19 » Wed Apr 17, 2013 7:42 am

Hello Henk!

Thank you for the reply. That certainly does give some insight to what else is happening to the body. I didn't even think about the effects of smoking in general!! I had never enjoyed smoking cigarettes and so I had never really done it, it always made me feel sick, dizzy, and just gross. Even more reason to have a healthier lifestyle.

I appreciate the input! Every new bit helps :)
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Re: Medical Marijuana to help with symptoms?

Postby Gabe9ner » Mon Nov 18, 2013 3:59 am

Great point on the smoking. How about taking the "oil" version of Medical Marijuana with CBD as well as THC?

There are great success stories on cancer patients using cannabis oil with both THC and CBD.
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Re: Medical Marijuana to help with symptoms?

Postby vandy » Mon Nov 18, 2013 1:50 pm

Hi Gabe9ner,

Great point on the smoking. How about taking the "oil" version of Medical Marijuana with CBD as well as THC?

There are great success stories on cancer patients using cannabis oil with both THC and CBD.


The key with Marijuana and it's chemical components is that they have anti-inflammatory properties. We can't have anti-inflammatory medications as they are generally known to thin the blood. Any blood thinning medications are avoided because if and when a bleed would occur, logic says that thinner blood would flow faster and more prolonged, making damage to the brain more likely.

Smoking in itself causes inflammation which is something we need to avoid as well.

Hope that clarifies things a bit more.

Best wishes,

Henk :ugeek:
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Re: Medical Marijuana to help with symptoms?

Postby MOE » Thu Mar 27, 2014 11:39 pm

10 doctors saying weed is bad for you or for your brain is just 10 people that heard the same rumor but you can't compare it to smoking cigarettes.

Anticancer Activity of Cannabinoids Dr Donald Tashkin MD (A pulmonologist)
https://www.youtube.com/watch?v=wFNzezbc27w

Then there's all these people that say cannabis kills brain cells; well that's not exactly true either.

Cannabis kills brain cells?
https://www.youtube.com/watch?v=IWlYWNYYLqA

Smoking or vaping it only seems to help with nausea or appetite and at least in my case cannabis oil has helped reduce the numbness and pins and needles feeling in my left side, it has also helped me regain more feeling; even sexually as half my body used to be numb, although I would recommend looking for a plant high in CBD.

THC doesn't seem to help as much. Look as Vandy has pointed out there are quite a few unknowns in experimenting with yourself but at least in my case I wouldn't have risked my last surgery if I had known about this weed oil before and the option is to not do anything and wait for another rebleed or death?

I mean if you have other options go for those first, but if you're like me; out of money and out of options is this or nothing.
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Re: Medical Marijuana to help with symptoms?

Postby vandy » Thu Apr 17, 2014 12:19 pm

Here again some information that shows we need to do way more studies before jumping into using "pot" as a form of medication. Pharmaceutical companies have to go through years and years of studies before they can market any medication. Why should "pot" be any different?

http://www.cbc.ca/news/health/casual-pot-users-may-show-brain-changes-that-could-foreshadow-trouble-1.2612537?cmp=fbtl

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Re: Medical Marijuana to help with symptoms?

Postby MOE » Wed Apr 30, 2014 11:42 pm

There have been reports that weed does have some negative effects on the young developing brain such as ADD but after the age of 20 there seems to be less issues.

If you are gonna try it go with a high CBD/low THC strain, THC is what gets you high while CBD is the non psychoactive medicinal component.

https://www.youtube.com/watch?v=v3pTZmHCyM4

At least in my case it has to be taken orally.
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Re: Medical Marijuana to help with symptoms?

Postby PattiG » Thu Jun 12, 2014 10:35 pm

A current article from Neurology Now re: Medical Marijuana @ http://journals.lww.com/neurologynow/Fu ... nd.22.aspx.
Best wishes,
Patti
Multiple CMs throughout my brain. I have had 4 bleeds requiring surgery between 1987 and 2010. Locations of craniotomies have been: L. parietal, R. parietal, L. temporal and R. thalamus.
Cavernous Malformations & Central Pain Syndrome: http://support.stroke.org/site/News2?ne ... 1&id=17759
A Day in the Life of CPS @ http://www.youtube.com/watch?v=8ed6hazqNYU&feature=plcp
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Re: Medical Marijuana to help with symptoms?

Postby MOE » Thu Sep 18, 2014 6:00 pm

The main problem is that most people still relate marijuana or cannabis to smoking weed and getting high while the most medicinal strains out there are quite the opposite and actually have less than 1% of the psychoactive component.

So you can take it in pill form or as an oil or extract get the medicinal effects without getting high. Places were its still illegal you cannot get these medicinal strains since they don't get you high no one buys them and they have no value in the black market.

Kids in Colorado with epilepsy that have tried every single drug out there are now trying a special strain that was previously called Hippie's Disappointment, why the name? Because it doesn't get you high so therefore has no effect on someone who is healthy.

http://youtu.be/bx6niSTzm3o

Its extract has now been legalized in Florida.

More info:
http://youtu.be/S9qkYLtAhSQ
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