Pregnancy & Delivery w a CA?

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Pregnancy & Delivery w a CA?

Postby lesliemarie21 » Mon Jul 31, 2017 7:06 pm

I just found out that I am pregnant with my second child. I have 2 angiomas and a DVA in my Occipital lobe. I had my daughter vaginally over 6 years ago. I did not know I had a CA then, but I didn't suffer from any problems that I know of, but my doctors have said that I do have a small previous bleed that could have potentially been from the pressure of giving birth. I am no longer on any medications that I was on because of my pregnancy, like epilepsy meds. I am having occasional headaches and nausea, and I space out sometimes (absence seizures), but it has been rare since becoming pregnant. Not like before...

My question is.. has anyone out there given birth with their CA ,vaginally and it was successful with no problems during or after? I am very afraid to give birth vaginally again but am also very afraid of a C-section. My neurologist is of NO help. He is an epilepsy specialist; I have asked to be transferred to a CA specialist but he says there is no need. As far as birth goes, he says he can not give me any information other than what he can f ind on the internet which is the exact same information I found and it varied.. and that I should refer my question back to my OB, which has told me that he should know. So, as of right now, I am stuck in limbo. I am so nervous and don't know what route I should take..

Also, my daughter has been having headaches (she's 6), for over a year now and she has fainted once. When she was taken by ambulance to the ER, the would not scan her at the children's hospital ER because she was so young, even after I told them about my condition and it's possibility to be hereditary. I asked my doctor if I should take her to have her scanned, and he said since I am white, it' is probably not genetic. My maternal uncle has a AVM in his brain and my maternal great uncle has an AVM in his wrist. My doctor still says she probably just needs to drink more water and get more sleep because she is small. My insurance (military Tricare) won't pay for genetic testing as far as I know.

Any suggestions?
lesliemarie21
 
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Re: Pregnancy & Delivery w a CA?

Postby Elizabeth » Tue Aug 01, 2017 9:18 pm

First of all, congratulations on your pregnancy!!! Where do you live? My obgyn is the best if you are in Los Angeles. She recommended an "easy" vaginal birth for my second delivery after my first difficult delivery triggered all kinds of problems. The "easy" one was awesome. Epidural, labor down, one push and it was over. No complications, no problems.

Hopefully yours is not genetic. Because of the dva, makes me think its probably not genetic. People with a dva can get multiples around the dva and its still not genetic. Because you're white is a lame reason to say its not genetic. Plenty of white people carry the genetic form. You can get genetic testing, but its probably expensive. They might offer it with ur pregnancy.
You might want to consult with one or more of the known experts to help you figure out if genetic testing is something you might want to do.
Most prenatal vitamins have an omega oil supplement, which can thin blood. You might want to talk to your doctors about if that's a good idea for you. I personally didn't take them the second time, but I did take them the first time before I knew I had an angioma.
As far as your daughter, if my child was presenting with progressive neurological symptoms, I would probably want an MRI personally. There is added risk because depending on her ability to lie still for a long time, they probably would need to sedate her. That's another risk benefit gamble. You might want to get a second opinion for her as well, just to be safe. Kids aren't always great at expressing symptoms so the more you know, the better you can judge what's going on.
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com
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