Yikes! Will ur insurance cover anything? I changed insurance so mine would be covered, but I think the bills I saw totals for hospital, suregery, anesthesia, doctors and initial rehab(about 3 weeks total) were something like $125-150,000. I had a ppo so my out of pocket max was like $5,000 at the time and I met it that year and the next. I spent a lot of $ on my recovery because you only get one shot at it and a whole lifetime to live with the outcome. U might also try to get an out of network exception...I did that for my eye MD. If they don't have a qualified expert to do what needs to be done they might pay for you to see someone else. Good luck!
Diagnosed September '09 with one CM centered in the right insular cortex/basal ganglia. Saw many, many doctors and had surgery 12/10/10 with Dr. Spetzler. I am thrilled to have this bleeding thing out of my head even though I suffered a stroke during surgery. Have had/ continue to make an amazing recovery. http://www.thankfulforeveryday.blogspot.com