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	<title>Angioma Alliance Blog</title>
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	<link>http://www.angiomacommunity.org/blog</link>
	<description>News and Information about Cavernous Angioma</description>
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		<title>Notes from the Road #1</title>
		<link>http://www.angiomacommunity.org/blog/2012/02/notes-from-the-road-1/</link>
		<comments>http://www.angiomacommunity.org/blog/2012/02/notes-from-the-road-1/#comments</comments>
		<pubDate>Sat, 18 Feb 2012 17:37:17 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=527</guid>
		<description><![CDATA[I’ve been on the road with Julia for four weeks now and it’s time to offer an update of our journey. We’ve been having a wonderful time meeting families in Florida, Mississippi, and Texas. Today, we’ll be attending a get &#8230; <a href="http://www.angiomacommunity.org/blog/2012/02/notes-from-the-road-1/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2012/02/notes-from-the-road-1/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>January 2012 Letter to the Community</title>
		<link>http://www.angiomacommunity.org/blog/2012/01/january-2012-letter-to-the-community/</link>
		<comments>http://www.angiomacommunity.org/blog/2012/01/january-2012-letter-to-the-community/#comments</comments>
		<pubDate>Tue, 17 Jan 2012 15:40:13 +0000</pubDate>
		<dc:creator>Sara Sukalich</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=516</guid>
		<description><![CDATA[January 17, 2012 Happy New Year from Angioma Alliance!  The Board of Directors wants to let you know about the plans that Angioma Alliance has for 2012. It is an exciting time for both Angioma Alliance and all those affected &#8230; <a href="http://www.angiomacommunity.org/blog/2012/01/january-2012-letter-to-the-community/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2012/01/january-2012-letter-to-the-community/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>The Take Away Message from the 2011 Scientific Workshop</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/the-take-away-message-from-the-2011-scientific-workshop/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/the-take-away-message-from-the-2011-scientific-workshop/#comments</comments>
		<pubDate>Sun, 20 Nov 2011 17:10:00 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=510</guid>
		<description><![CDATA[The big topic of this year&#8217;s workshop was treatment. Angioma Alliance, as an organization, is committed to being part of an international consortium for clinical drug trials.  There are many roles that we will play, but foremost is our obligation &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/the-take-away-message-from-the-2011-scientific-workshop/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/the-take-away-message-from-the-2011-scientific-workshop/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>The Final Day of the Scientific Workshop</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/the-final-day-of-the-scientific-workshop/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/the-final-day-of-the-scientific-workshop/#comments</comments>
		<pubDate>Sun, 20 Nov 2011 17:00:42 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=505</guid>
		<description><![CDATA[The first presentation of the morning was entitled “Cavernous malformations of the human brainstem: quasi-automatic three-dimensional-reconstruction from a stack of serial histological slides with a computerized technique” by François Chapon of CHU de Caen. François demonstrated how he is able &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/the-final-day-of-the-scientific-workshop/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/the-final-day-of-the-scientific-workshop/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Scientific Workshop Day 2</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/scientific-workshop-day-2/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/scientific-workshop-day-2/#comments</comments>
		<pubDate>Fri, 18 Nov 2011 09:26:07 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=491</guid>
		<description><![CDATA[Apologies for the delay in this post &#8211; the day was quite full yesterday. The Thursday presentations were quite exciting with more talk about medications to treat cavernous angiomas but also discussion of unexpected impacts of CCM mutations. Here is &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/scientific-workshop-day-2/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/scientific-workshop-day-2/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Wednesday night at the Scientific Workshop</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/wednesday-night-at-the-scientific-workshop/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/wednesday-night-at-the-scientific-workshop/#comments</comments>
		<pubDate>Thu, 17 Nov 2011 08:32:12 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=488</guid>
		<description><![CDATA[Today, the Scientific Workshop will be focused on vascular biology and animal models of the illness. The presentations will be bridging the gap between very basic molecular biology of yesterday and how CCM plays itself out in animals. But first, &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/wednesday-night-at-the-scientific-workshop/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/wednesday-night-at-the-scientific-workshop/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>The Meeting Begins</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/the-meeting-begins/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/the-meeting-begins/#comments</comments>
		<pubDate>Wed, 16 Nov 2011 16:37:23 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=472</guid>
		<description><![CDATA[The Scientific Workshop has opened, diving immediately into a session of five presentations on various aspects of cavernous angioma signalling and molecular biology.  I&#8217;m looking at a room that is now filled nearly to capacity with 40 scientists representing more &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/the-meeting-begins/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/the-meeting-begins/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Live Blogging from the Scientific Workshop #1</title>
		<link>http://www.angiomacommunity.org/blog/2011/11/live-blogging-from-the-scientific-workshop-1/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/11/live-blogging-from-the-scientific-workshop-1/#comments</comments>
		<pubDate>Wed, 16 Nov 2011 13:10:52 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=446</guid>
		<description><![CDATA[We are almost at the beginning of the 2011 Angioma Alliance Pathobiology of Cerebral Cavernous Malformations Scientific Workshop. In less than an hour, our 7th annual international meeting will kick off. It will run across three days Wednesday afternoon, Thursday &#8230; <a href="http://www.angiomacommunity.org/blog/2011/11/live-blogging-from-the-scientific-workshop-1/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/11/live-blogging-from-the-scientific-workshop-1/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>New Study in Mice shows Promise for Treating Cavernous Angioma</title>
		<link>http://www.angiomacommunity.org/blog/2011/10/new-study-in-mice-shows-promise-for-treating-cavernous-angioma/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/10/new-study-in-mice-shows-promise-for-treating-cavernous-angioma/#comments</comments>
		<pubDate>Fri, 28 Oct 2011 16:24:47 +0000</pubDate>
		<dc:creator>Amy Akers</dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=440</guid>
		<description><![CDATA[In a collaborative effort, researchers at the University of Chicago, University of California San Diego, and Duke University have completed a study that shows a drug, called Fasudil, in the future may be used to treat patients with Cavernous Angioma. &#8230; <a href="http://www.angiomacommunity.org/blog/2011/10/new-study-in-mice-shows-promise-for-treating-cavernous-angioma/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/10/new-study-in-mice-shows-promise-for-treating-cavernous-angioma/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Get Involved: Start an Action Group!</title>
		<link>http://www.angiomacommunity.org/blog/2011/09/get-involved-start-a-steering-committee/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/09/get-involved-start-a-steering-committee/#comments</comments>
		<pubDate>Mon, 05 Sep 2011 19:38:12 +0000</pubDate>
		<dc:creator>Sara Sukalich</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=430</guid>
		<description><![CDATA[One of the strengths of the Angioma Alliance is that it brings together a really diverse group of people. Our lives are affected by angiomas in one way or another but we aren’t all the same. We live all over &#8230; <a href="http://www.angiomacommunity.org/blog/2011/09/get-involved-start-a-steering-committee/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/09/get-involved-start-a-steering-committee/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Cavernous Angioma Conference in Santa Fe</title>
		<link>http://www.angiomacommunity.org/blog/2011/08/cavernous-angioma-conference-in-santa-fe/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/08/cavernous-angioma-conference-in-santa-fe/#comments</comments>
		<pubDate>Thu, 11 Aug 2011 04:02:45 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=425</guid>
		<description><![CDATA[Please join us on Saturday, August 27th, 2011 to hear presentations by neurologist, radiologists, neurosurgeons, and affected individuals. The conference will be held from 10:00 AM to 2:00 PM at the Courtyard by Marriott Santa Fe, 3347 Cerrillos Road, Santa Fe, New Mexico. Call &#8230; <a href="http://www.angiomacommunity.org/blog/2011/08/cavernous-angioma-conference-in-santa-fe/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/08/cavernous-angioma-conference-in-santa-fe/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Announcement: Poker Tournament to Benefit Angioma Alliance</title>
		<link>http://www.angiomacommunity.org/blog/2011/07/announcement-poker-tournament-to-benefit-angioma-alliance/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/07/announcement-poker-tournament-to-benefit-angioma-alliance/#comments</comments>
		<pubDate>Mon, 25 Jul 2011 22:09:23 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=413</guid>
		<description><![CDATA[&#160; &#160;]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/07/announcement-poker-tournament-to-benefit-angioma-alliance/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Dealing with stress</title>
		<link>http://www.angiomacommunity.org/blog/2011/07/dealing-with-stress/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/07/dealing-with-stress/#comments</comments>
		<pubDate>Mon, 11 Jul 2011 14:24:18 +0000</pubDate>
		<dc:creator>Sara Sukalich</dc:creator>
				<category><![CDATA[For Patients]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=400</guid>
		<description><![CDATA[Feelings of stress occur when dealing with change. Being diagnosed with a cavernous angioma is certainly a major stress-provoking change. Living with problems caused by the cavernous angioma, such as strokes and seizures, can lead to daily stress, as can &#8230; <a href="http://www.angiomacommunity.org/blog/2011/07/dealing-with-stress/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/07/dealing-with-stress/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Do You Sell Online? Become an Angioma Alliance Partner</title>
		<link>http://www.angiomacommunity.org/blog/2011/04/do-you-sell-online-become-an-angioma-alliance-partner/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/04/do-you-sell-online-become-an-angioma-alliance-partner/#comments</comments>
		<pubDate>Tue, 12 Apr 2011 22:51:43 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=360</guid>
		<description><![CDATA[Do you have an online store? Angioma Alliance is designing a new section of our website that will allow us to link to our members&#8217; storefronts. Please let us know if you are interested in becoming an Angioma Alliance Partner. The &#8230; <a href="http://www.angiomacommunity.org/blog/2011/04/do-you-sell-online-become-an-angioma-alliance-partner/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/04/do-you-sell-online-become-an-angioma-alliance-partner/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Patient Weekend Presentations</title>
		<link>http://www.angiomacommunity.org/blog/2011/04/patient-weekend-presentations/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/04/patient-weekend-presentations/#comments</comments>
		<pubDate>Mon, 11 Apr 2011 02:05:32 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=356</guid>
		<description><![CDATA[If you&#8217;ve been active on the Community Forum or our Facebook page, you&#8217;ve seen a number of postings from attendees about the Patient Weekend in Dallas. I say &#8220;Hear, hear!&#8221;  It was a great weekend. We&#8217;ve put the slides from &#8230; <a href="http://www.angiomacommunity.org/blog/2011/04/patient-weekend-presentations/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/04/patient-weekend-presentations/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Winter 2011 Newsletter Available</title>
		<link>http://www.angiomacommunity.org/blog/2011/03/winter-2011-newsletter-available/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/03/winter-2011-newsletter-available/#comments</comments>
		<pubDate>Sat, 05 Mar 2011 01:06:20 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=353</guid>
		<description><![CDATA[The Angioma Alliance Winter 2011 Newsletter is now available at www.angioma.org/documents/newsletter.pdf. Find the latest information on the Dallas Patient Weekend, the new CCM3 Consultation and Clinical Research Center, and much more.  Happy reading!]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/03/winter-2011-newsletter-available/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Cavernous Angiomas and Surgery: Common Questions</title>
		<link>http://www.angiomacommunity.org/blog/2011/03/cavernous-angiomas-and-surgery-common-questions/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/03/cavernous-angiomas-and-surgery-common-questions/#comments</comments>
		<pubDate>Thu, 03 Mar 2011 18:08:07 +0000</pubDate>
		<dc:creator>Amy Akers</dc:creator>
				<category><![CDATA[For Patients]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=344</guid>
		<description><![CDATA[Many people affected by cavernous angioma have questions regarding surgery. This article addresses the most common questions, with answers based on the published clinical literature cited at the end of this article. For information specific to you or your family, &#8230; <a href="http://www.angiomacommunity.org/blog/2011/03/cavernous-angiomas-and-surgery-common-questions/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/03/cavernous-angiomas-and-surgery-common-questions/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Fifth International Cavernoma Alliance UK Forum 2011</title>
		<link>http://www.angiomacommunity.org/blog/2011/02/fifth-international-cavernoma-alliance-uk-forum-2011/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/02/fifth-international-cavernoma-alliance-uk-forum-2011/#comments</comments>
		<pubDate>Mon, 07 Feb 2011 11:44:56 +0000</pubDate>
		<dc:creator>Kirk</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=334</guid>
		<description><![CDATA[The Board of Trustees would like to invite you to attend the International Cavernoma Alliance UK Forum on Saturday 4th June 2011 at the Orion Suite, Grange Holborn Hotel, 50-60 Southampton Row, London WC1B 4AR, from 0900 to 1700. THE &#8230; <a href="http://www.angiomacommunity.org/blog/2011/02/fifth-international-cavernoma-alliance-uk-forum-2011/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/02/fifth-international-cavernoma-alliance-uk-forum-2011/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Gardening for a Cure</title>
		<link>http://www.angiomacommunity.org/blog/2011/01/gardening-for-a-cure/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/01/gardening-for-a-cure/#comments</comments>
		<pubDate>Tue, 25 Jan 2011 23:52:32 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=327</guid>
		<description><![CDATA[For those of you in the US Northeast and Midwest, it may be hard to believe, but winter will end one day. In the meantime, I encourage you to think warm thoughts by planning your garden. Angioma Alliance has teamed &#8230; <a href="http://www.angiomacommunity.org/blog/2011/01/gardening-for-a-cure/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/01/gardening-for-a-cure/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Patient Weekend Registration Now Open</title>
		<link>http://www.angiomacommunity.org/blog/2011/01/patient-weekend-registration-now-open/</link>
		<comments>http://www.angiomacommunity.org/blog/2011/01/patient-weekend-registration-now-open/#comments</comments>
		<pubDate>Fri, 14 Jan 2011 22:22:38 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=302</guid>
		<description><![CDATA[Please follow this link to get the latest information and register for the 2011 Angioma Alliance Patient Weekend being held March 25-27 in Dallas, TX: http://tinyurl.com/4qu7wfe Here are the highlights: Friday, March 25th  7 pm &#8211; 9 pm: Evening get-together at &#8230; <a href="http://www.angiomacommunity.org/blog/2011/01/patient-weekend-registration-now-open/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2011/01/patient-weekend-registration-now-open/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Thank you to our volunteers!</title>
		<link>http://www.angiomacommunity.org/blog/2010/12/thank-you-to-our-volunteers/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/12/thank-you-to-our-volunteers/#comments</comments>
		<pubDate>Mon, 13 Dec 2010 04:22:26 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=298</guid>
		<description><![CDATA[I wanted to take a few minutes to recognize the volunteers that helped us in so many ways. You are incredible! The list is long, and I apologize in advance if I have forgotten anyone. First, I&#8217;d like to recognize &#8230; <a href="http://www.angiomacommunity.org/blog/2010/12/thank-you-to-our-volunteers/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Fall Newsletter Now Available</title>
		<link>http://www.angiomacommunity.org/blog/2010/11/fall-newsletter-now-available/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/11/fall-newsletter-now-available/#comments</comments>
		<pubDate>Thu, 25 Nov 2010 15:07:51 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=294</guid>
		<description><![CDATA[The Angioma Alliance Fall 2010 Newsletter can be found at http://www.angioma.org/documents/newsletter.pdf This issue features a report on the 2010 Scientific Workshop, details of the upcoming family conference in the Dallas area, and many more interesting tidbits.  We hope you enjoy!]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/11/fall-newsletter-now-available/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Presenting the Patient Registry to the Scientific Community</title>
		<link>http://www.angiomacommunity.org/blog/2010/11/presenting-the-patient-registry-to-the-scientific-community/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/11/presenting-the-patient-registry-to-the-scientific-community/#comments</comments>
		<pubDate>Wed, 24 Nov 2010 13:00:03 +0000</pubDate>
		<dc:creator>Amy Akers</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=274</guid>
		<description><![CDATA[The CCM Scientific Workshop provided an ideal opportunity to present the International Cavernous Angioma Patient Registry to the scientific community.  In a short oral presentation, I described the purpose of the Registry (to be a communication tool) and how researchers &#8230; <a href="http://www.angiomacommunity.org/blog/2010/11/presenting-the-patient-registry-to-the-scientific-community/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/11/presenting-the-patient-registry-to-the-scientific-community/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>New German Section on Community Forum</title>
		<link>http://www.angiomacommunity.org/blog/2010/11/new-german-section-on-community-forum/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/11/new-german-section-on-community-forum/#comments</comments>
		<pubDate>Sun, 14 Nov 2010 16:06:09 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=257</guid>
		<description><![CDATA[We&#8217;ve just added a section in Deutsch to our Community Forum (http://www.angiomacommunity.org/forum/) so that German speakers will be able to communicate with each other about all things related to cavernous angiomas (Kavernom). Previously, there had been an informal German group sharing their own &#8230; <a href="http://www.angiomacommunity.org/blog/2010/11/new-german-section-on-community-forum/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/11/new-german-section-on-community-forum/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Shopping at Tom Thumb and Randall&#8217;s Grocery Stores Helps Angioma Alliance</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/shopping-at-tom-thumb-and-randalls-grocery-stores-helps-angioma-alliance/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/shopping-at-tom-thumb-and-randalls-grocery-stores-helps-angioma-alliance/#comments</comments>
		<pubDate>Fri, 29 Oct 2010 01:22:04 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=251</guid>
		<description><![CDATA[Tom Thumb and Randalls grocery stores will donate $1 to Angioma Alliance for every $50 you spend on groceries through the end of the year. All you have to do is link your reward/remarkable card to the ID 12518 on the &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/shopping-at-tom-thumb-and-randalls-grocery-stores-helps-angioma-alliance/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/10/shopping-at-tom-thumb-and-randalls-grocery-stores-helps-angioma-alliance/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Record Numbers Register for Scientific Workshop</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/record-numbers-register-for-scientific-workshop/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/record-numbers-register-for-scientific-workshop/#comments</comments>
		<pubDate>Sat, 23 Oct 2010 20:12:07 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=240</guid>
		<description><![CDATA[The 6th Annual Angioma Alliance Pathobiology of Cerebral Cavernous Malformations Scientific Workshop, scheduled for October 31st through November 2nd, is shaping up to be our most successful research event ever. As of October 23rd, we are expecting: 58 registered attendees representing &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/record-numbers-register-for-scientific-workshop/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/10/record-numbers-register-for-scientific-workshop/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Do You Know About igive.com?</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/do-you-know-about-igive-com/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/do-you-know-about-igive-com/#comments</comments>
		<pubDate>Sat, 16 Oct 2010 02:31:50 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=226</guid>
		<description><![CDATA[Here’s an easy and free way to help Angioma Alliance. When you shop online, use www.igive.com.  It’s simple to register at igive.com and name Angioma Alliance as your preferred charity. The first time you make a purchase using igive.com, Angioma &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/do-you-know-about-igive-com/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/10/do-you-know-about-igive-com/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>What have we learned from the DNA &amp; Tissue Bank? A lot!!!</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/what-have-we-learned-from-the-dna-tissue-bank-a-lot/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/what-have-we-learned-from-the-dna-tissue-bank-a-lot/#comments</comments>
		<pubDate>Sun, 10 Oct 2010 20:48:19 +0000</pubDate>
		<dc:creator>Amy Akers</dc:creator>
				<category><![CDATA[For Patients]]></category>
		<category><![CDATA[For Professionals]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=151</guid>
		<description><![CDATA[If you have participated in the DNA &#38; Tissue Bank, thank you!!  You have given a tremendous resource to researchers who are using your DNA, tissue samples, and clinical information to make amazing advances in research.  Below are some examples &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/what-have-we-learned-from-the-dna-tissue-bank-a-lot/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/10/what-have-we-learned-from-the-dna-tissue-bank-a-lot/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
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		<title>Join the Angioma Alliance Tissue Bank and Patient Registry Programs. It&#8217;s So Easy!</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/join-the-angioma-alliance-tissue-bank-and-patient-registry-programs-its-so-easy/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/join-the-angioma-alliance-tissue-bank-and-patient-registry-programs-its-so-easy/#comments</comments>
		<pubDate>Sun, 10 Oct 2010 05:31:13 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=67</guid>
		<description><![CDATA[This article was written by our member Les Duncan: It stinks to have an incurable illness, with an unpredictable pattern, and no treatment other than brain surgery! So, what can those of us who suffer from CCM do about it? &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/join-the-angioma-alliance-tissue-bank-and-patient-registry-programs-its-so-easy/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.angiomacommunity.org/blog/2010/10/join-the-angioma-alliance-tissue-bank-and-patient-registry-programs-its-so-easy/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Working to Do the Impossible</title>
		<link>http://www.angiomacommunity.org/blog/2010/10/working-to-do-the-impossible/</link>
		<comments>http://www.angiomacommunity.org/blog/2010/10/working-to-do-the-impossible/#comments</comments>
		<pubDate>Fri, 08 Oct 2010 23:44:40 +0000</pubDate>
		<dc:creator>Connie Lee</dc:creator>
				<category><![CDATA[For Patients]]></category>

		<guid isPermaLink="false">http://www.angiomacommunity.org/blog/?p=214</guid>
		<description><![CDATA[This article is about Ryan Westmoreland, a young baseball player who recently had surgery for a cavernous angioma in the brainstem, but I think it is equally true of everyone who has been fighting their way back from a bleed or &#8230; <a href="http://www.angiomacommunity.org/blog/2010/10/working-to-do-the-impossible/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
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		<slash:comments>0</slash:comments>
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