Author Archives: Connie Lee

I’ve been on the road with Julia for four weeks now and it’s time to offer an update of our journey. We’ve been having a wonderful time meeting families in Florida, Mississippi, and Texas. Today, we’ll be attending a get … Continue reading →

The big topic of this year’s workshop was treatment. Angioma Alliance, as an organization, is committed to being part of an international consortium for clinical drug trials.  There are many roles that we will play, but foremost is our obligation … Continue reading →

The first presentation of the morning was entitled “Cavernous malformations of the human brainstem: quasi-automatic three-dimensional-reconstruction from a stack of serial histological slides with a computerized technique” by François Chapon of CHU de Caen. François demonstrated how he is able … Continue reading →

Apologies for the delay in this post – the day was quite full yesterday. The Thursday presentations were quite exciting with more talk about medications to treat cavernous angiomas but also discussion of unexpected impacts of CCM mutations. Here is … Continue reading →

Today, the Scientific Workshop will be focused on vascular biology and animal models of the illness. The presentations will be bridging the gap between very basic molecular biology of yesterday and how CCM plays itself out in animals. But first, … Continue reading →

The Scientific Workshop has opened, diving immediately into a session of five presentations on various aspects of cavernous angioma signalling and molecular biology.  I’m looking at a room that is now filled nearly to capacity with 40 scientists representing more … Continue reading →